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Online Resources for Patients & Families

The following national sites provide information related to four common topics:

General Palliative Care Information

Caring Connections- A program of the National Hospice and Palliative Care Organization (NHPCO), that provides free resources and information to help people make decisions about end-of-life care and services before a crisis.  This website provides valuable tips on planning ahead, caring for someone, living with an illness and grieving a loss.

Dying Well- Dr. Ira Byock provides resources for patients facing life-limiting illnesses, their families and caregivers,

Get Palliative Care- Provides general education and information on Palliative Care.  Also includes a provider directory.  Sponsored by the Center to Advance Palliative Care.

Hospice Information Center- An online resource center, developed by the Hospice Foundation of America, that provides information about hospice care and other areas of the dying and grieving process.

Palliative Doctors- A website developed by the American Academy of Hospice and Palliative Medicine that provides hospice and palliative care information and resources for patients and their families

Health/Medial Information

American Cancer Society- Provides a range of information for patients, caregivers and survivors, including a section titled "What's Going on in my Community?" This section provides information about events, news, resources, volunteer opportunities and more in your area.

Medlineplus- MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. Preformulated MEDLINE searches are included in MedlinePlus and give easy access to medical journal articles. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.  To begin an immediate search of the extensive  MedlinePlus website, enter your search terms below:

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National Institute on Aging- NIA provides health information and resources for seniors

WebMD  WebMD provides valuable health information, tools for managing your health and support to those who seek information.

 

Planning Ahead

Do Your Proxy- This is a website that makes advance directives easy and accessible. This free tool helps people create both healthcare proxies and living wills online.

Medicare Rights- The Medicare Rights Center is a national, nonprofit consumer service organization that works to ensure access to affordable health care for older adults and people with disabilities through counseling and advocacy, educational programs and public policy initiatives. Since 1989, we've been helping people with Medicare understand their rights and benefits, navigate the Medicare system and secure the quality care they deserve. We're the largest and most reliable independent source of Medicare information and assistance in the United States.

Support forums: 

Beliefnet- Beliefnet is a mulit-faith, independent website that hopes to help people meet their religious, spiritual and moral needs.

Griefnet-  An on-line grief support forum that provides help to people working through loss and grief issues of many kinds.

Family Caregiver Alliance   Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, FCA now offers programs, resources and support groups to support and sustain caregivers.

 

 

 

 

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